I talked with the rickets doctors today (the ones who made up the plan) and got good news. David has done well with his first two doses of the new med, and he's not showing the side effects they were afraid of. They were waiting on a couple more results to decide if they like the dose he's at now, or if they will raise it again this afternoon. Once they settle on the dose, they'll keep him "a couple more days" to watch for cumulative effects. So maybe home by the weekend.
Of course there are a lot of questions about going home. Will he keep the picc line? How often will he need lab work done? How will they watch longer term cumulative effects? But I'm in no rush, so we'll get the questions answered before we leave!
David slept more on the new med and seemed dizzy, but was in good spirits. So he at least doesn't seem distressed.
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