Thursday Update

I'm so sorry I didn't post earlier. It's been a busy day, along with some happy and sad.

Bottom line, they haven't been able to stop the seizure activity, though it is much better. They are not seeing the steroids making a difference. We have requested and the doctors agreed to work out a plan where David can be treated at home. They have another medicine to try, but we can try it at home. We won't be constantly watching the EEG, but instead just judging by David's behavior and gains or losses. He can be with us and go back to school and enjoy the things he loves!

So, we're working toward going home, knowing he'll likely still be having losses, but hoping they will be much slower now. We should have a meeting with the doctors tomorrow or Monday. I get training tomorrow on using a home suction machine. (David can't really handle his own drool and mucus any more. This might be part of his losses, or it might be a side effect of a med. we'll be trying to figure that out.) they are easing him off of some IV meds. Each thing is a little step closer to going home. We still don't know what tomorrow will bring, but he's smiling again and we'll make the most of every day!