I'm accessing from the library, but need to get back to T and the kids. Just a quick update - we found a nurse we like and are asking her to come for more days a week, so I'll have support 4-5 days a week. I'm getting more and more comfortable with her, so I think we'll work things out. We are doing 15 hr infusions a day, and that is actually working ok. I'm getting the help of a nurse at the doctor's office to advocate for staying with 15 if it is helping D.
I will post more when I can! Thanks to everyone for their support!
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